Monday, February 6, 2012

The Journey to ONE

My sweet baby girl turned one years old. I would like to say it just FLEW by, but it really didn't. Each day of Mia's sweet one year of life always had a heavy feeling to it. I hate to even admit it, but there were times that I wondered if I would only get to enjoy her for one year on this earth. I mean, let's admit it. There are major risks involved in a 4 hour cranial reconstructive surgery. It pained me to think that way, but it was my reality. But here we are... and little lady is stronger than ever.
I can remember telling Drew just weeks before her surgery that I would close my eyes and imagine myself at her birthday party singing "Happy Birthday" and watching her dig into her cake. I couldn't help but to cry tears of joy when that time finally came. To see her sitting in her highchair with that slowly fading zig-zag scar laughing and shoving cake in her mouth made me one happy mama.
Unfortunately, she has one small thumb sized area on her incision that is taking a LONG time to heal. Today at her one year check up, Dr. Good didn't seemed concerned about it and after noticing a bit of seborrheic dermatitis behind her ear (inflammatory skin condition that causes cradle cap and dandruff), we both had a lightbulb moment and think that this could be what is causing that area to crust up and be slow to heal. His advice? Leave it alone! So, I will!
Otherwise, she is great. She started walking around 11 months and is pretty darn good at it now. She might stumble and fall a little, but she is quick to get up and keep going (pretty close metaphor to her first year of life!). She is saying the typical "dada" and "mama" and even gave us a cute "uh oh" the other day. She even has an "evil dada" voice... so stinkin' cute. If you haven't heard it, you are missin' out! She knows and uses 5 signs ("more", "please", "thank you", "all done" and "paci"). Her sign for "more" is used very often as her appetite is insatiable. I caught her on the video monitor on Saturday morning sitting in her bed feverishly signing "more, more, more". Funny girl.
At her appointment today, Dr. Good said, "well, you know I have been waiting on my third." I looked at him with confusion until I realized what he was talking about. In medicine, there is a theory that things always come in threes. I can remember in days of working at the hospital that when a patient would pass, we would always be waiting for two more patients and it would typically always work out that way. So, he goes on to tell us that he think he found his third cranio case. A little 2 month old girl. He is hesitant to tell the family yet because he isn't certain. He went on to ask if we would be open to giving out our number to the family if they wanted to talk and get counsel from someone who had been through it! I was so excited to tell him "YES"! I am thrilled about the possible opportunity to get to minister to another family! Of course, my prayer is that the diagnosis turns out to be normal, but would be thrilled to help them out in any way if it does turn out to be craniosynostosis.
We would be honored if you could keep sweet Mia on your prayer list, especially praying for her incision to completely heal and stability while continuing to learn to walk! Also, please be in prayer for this new family and our potential opportunity to minister to them!