Today was a long tough day, but it ended with several victories! We have now been moved to a room and it feels so good. The room is quite large and we no longer have to share a tiny waiting room with lots of other families. Believe it or not, her swelling was already improving by the end of the day. She was even able to get slits from both eyes! I couldn't believe it! This was a specific prayer request from earlier today and God has answered those prayers. Thank you for your faithfulness in prayer.
Her sodium levels have been fantastic (so much that the PICU doctor said he suspected her first low number may have been wrong). So, because of this she was relieved of any fluid restriction and can eat when she's hungry! That makes for a happy Mia!
Her only problem right now is that she is not peeing on her own since removing her Foley catheter. Unfortunately, this means a Foley has to go in. As they were putting it in around 4:00, she began peeing on her own. They think she just needed a kick start. If she doesn't go again by midnight, the Foley goes back in. Boo. Please pray that she is able to go on her own. It is very difficult to cath her and it also introduces the risk of infection too.
Daddy has decided to stay with our sweet girl tonight. He said God blessed him with the ability to sleep through anything, and knows I would get ZERO sleep. He's an amazing father and precious husband. He called about an hour ago to give me a quick update and he was tickled to tell me that he got to hold her for the first time tonight. They needed to weigh her (to check for fluid retention), so he was able to get a few minutes of cuddle time. Even though it only lasted a few minutes, it overflowed his daddy cup.
I hope to post a few pics tomorrow once her swelling subsides a little. I have to warn you, if you thought she was cute before, just wait until you see her now. ;).
Make sure and sign her guest book and conti use to lift her up in prayers! We believe in the power of prayer!
Mia's guest book: www.websitetoolbox.com/guestbook/journeyofmiahope
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