One of the major reasons I write this blog is to allow other families who will be going through a similar journey to have a better understanding of the process. Because of this, I want to make sure and stay honest during this time... good or bad. Unfortunately, today I must write about the bad.
If you have been reading the blog, you are quite aware of the "spot that wouldn't heal". It started several weeks ago and was looked at by several doctors and dismissed as a place that just needed more time to heal. So we waited... and waited... and waited. Today was her scheduled check up with her plastic surgeon and I couldn't wait to see his opinion on the "spot". Sadly, the news I was hoping for ("we've got some medicine to clear that right up!") was not what we received. Instead, he explained that the spot was a collection of dead skin cells, hair and other waxy substances that have built up around an area of the incision that had formed an open spot. This collection had formed a cap on top of the open spot and basically was keeping it from being exposed to air and therefore unable to heal. The only solution? Remove the scab.
I'm not going to lie. This was one of the more traumatic experiences of my life. They were not able to give her any pain killer for this process, so the procedure involved me holding her down with all my strength while the Resident armed with tweezers and a small pair of scissors cut away to remove the scab. She screamed until she couldn't scream any more. A good bit of the scab was removed by ripping at the hair and scab with tweezers. I have never in my life wanted so badly to take the place of my little girl. Instead, I could only hug her and hold her and pray that the doctor's hands would move swiftly and precisely. By the end of it, she and I were both drenched in sweat and Maddie and Daddy were paralyzed with unbelief. Thankfully, it was a successful removal, but I must admit that it is hard to look at. Even now, I am sobbing as I write these words. That scab revealed a very deep wound that upon closer view exposed a tiny white spot. "Oh my... I can see her skull" I mumbled in disbelief. They cleaned out another spot near her ear (thankfully this one was was quicker) and it this one exposed a nice pink spot below the smaller scab.
So, what's the plan now? This might surprise you, but we are to keep it open and exposed to air. He doesn't want us to cover it unless she is in an environment where it can get dirty. Keep Neosporin on it and rinse it in the bath each night. In one week we go back to have it looked at again.
Please pray that her wound would heal quickly. Please pray that there are no other complications and that we can start to truly put this all behind us. Please pray that God would continue to give us strength and that He would allow me to fully trust in his path for our lives.
I have posted a few pictures below. Please understand that these are pretty graphic. Again, I want to be honest about this process, so I think the pictures are necessary to paint a true picture.
Oh my stars! So gut wrenching for a grown adult to view - I can't IMAGINE the pain that she experienced... I'm thankful for the resilience of children. Praying that this will heal quickly and completely. Also praying for Mama and Daddy - that this long journey will soon come to a close... Love you!
ReplyDeleteMy goodness! I can't imagine having spots that wouldn't heal! I was searching for other cranio blogs and I came across yours. Thanks for sharing your story! My daughter is almost a year post op.
ReplyDelete-Amanda
www.42911ad.blogspot.com